Welcome to Chronic Liberals! This page is dedicated to the chronically ill and disabled who want and should have a voice in the political process. Many people assume we are not interested, but in fact, I believe it makes us more in tune, because we have so much more at stake!
It is difficult if not impossible for us to participate in normal ways in the political process. However, there are things we can do. We will set out to find those ways in which we can make a difference, and we will do it together. Here are some great ideas to get started!
What makes us special is we are all zebras in a world of horses. We have a unique insight into how everything works. Let’s take advantage of that not only within ourselves, but also as a collective force. See what we can do.
This will be a live and continually updated resource document of organizations that provide resources and/or lobby on behalf of chronically ill and disabled people across the United States. Please let me know of any with which you are familiar.
- The Mighty: “We’re creating a safe platform for our community to tell their stories, connect with others and raise support for the causes they believe in. We are stronger when we face adversity together, and we know it. We’ve also partnered with over 100 nonprofit allies to deliver their excellent resources to our community.”
- Global Genes: “Global Genes is a leading rare disease patient advocacy organization. The foundation’s mission is to unify the international rare disease community by providing connections and resources to ease the burdens of affected patients and their families.”
- National Institutes of Health: “The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency — making important discoveries that improve health and save lives.”
- Medic Alert: “MedicAlert Foundation® is a non-profit, charitable, and membership-based organization dedicated to the well being of others. Founded in 1956 by Dr. Marion and Chrissie Collins, the foundation’s mission is to protect and save lives by serving as the global information link between members and emergency responders during medical emergencies and other times of need.”
- Disability Rights Washington: “Our mission is to advance the dignity, equality, and self-determination of people with disabilities. We work to pursue justice on matters related to human and legal rights. We provide free advocacy services to people with disabilities.”
- National Council on Disability: “NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of Presidential and Congressional appointees, an Executive Director appointed by the Chair, and a full-time professional staff.”
- The Disability Visibility Project: “The Disability Visibility Project (DVP)™ is an online community dedicated to recording, amplifying, and sharing disability stories and culture.”
- Adapt: “ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.”
- Crip the Vote: “#CripTheVote is a nonpartisan campaign to engage both voters and politicians in a productive discussion about disability issues in the United States, with the hope that Disability takes on greater prominence within the American political landscape.”
- ChronicallyCrabby: My personal blog full of advice, diary entries, and musings on life with a chronic illness.
- Stat News: “STAT delivers fast, deep, and tough-minded journalism. We take you inside science labs and hospitals, biotech boardrooms, and political backrooms. We dissect crucial discoveries. We examine controversies and puncture hype. We hold individuals and institutions accountable.”
We will continue to add to this document and let you know when updates have been made.
-Renee and Chronic Liberals